Wednesday, October 6, 2010

I have talked about how onerous my day is in my home medical treatment but never really broke it down exactly. I'm going to now. I wish I was wealthy enough to pay someone to do ALL of this, so that I didn't have to do ANY of it to myself at all. Other than actually swallow the pills.

6am: injection. pills. powder.
7am: dressing change.
9am: disconnect from TPN.
10am: pills. check blood sugar.
12pm: home health nurse visit Mon and Thurs.
2pm: injection. pills. powder.
4pm: check blood sugar. prepare TPN. change ostomy bag Mon and Fri.
5pm: connect to TPN.
6pm: pills.
7pm: dressing change.
10pm: injection. pills. powder.

I also am emptying my ostomy bag of its contents at least once an hour, 24/7. So I have a few hour breaks here and there but yeah.... You can see why this is an ordeal and I didn't even list what it actually takes to perform some of these steps.

I can't wait till my next surgery and this is over!

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Today's Jeopardy answer; A great cleaning device. A great rapper. My personal mantra when dealing with little personal annoyances.

The question; What is QTIP?

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What I am most fervently praying for right now,for my Crohns to go into permanent remission and to only have the desire to do good.

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